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Forum topic by SCOTSMAN posted 1855 days ago 1344 views 0 times favorited 44 replies Add to Favorites Watch
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SCOTSMAN

5241 posts in 2180 days


1855 days ago

Hi to all my friends I need to explain aboyut the probl;ems I have with my health.I have had quite afew people asking me how I manage to work with parkinsons diseas please read my introduction below which I posted the first day I got registered here to explain I have a serious nuerological disease as well as heart problems the neuiro logicl disease is from the same area of the brain as parkinsons and is a parkinsonian associated diseas in other words parkinsons s disease has many associated parkinsonsian diseases The parkinsons I have is quite different to paRKINSONS per say we understan it is as follows I have constant neaurological movements brought under control with the same meds as parkinsons ire dopamine which I have taken for about nigh on fifteen years maybe more and I also take a combination of other drugs including daily six times a day morphine or sometimes more as it helps me sleep with the vilont movements I never slept more than about eight minutes at a time and my life was not good my movements are much worse than parkinsons without the medication arms and legs fly about uncontrollably but with the meds that has been over many years brought down to a controllable level so long as I keep on the medication without it life is almost unbearabley bad.I am quite happy with my life and keep going as best I can but to recap I*m dont haVE PARKINSONS DISEASE AS WE ALL know it but a form of parkinsons disease i e a parkinsonsiaN ILLNESS BUT NOT FULL PARKINSEONS, when things are very bad which they have not been for a number of years I am really not able even tom sleep with the involuntery movements.I haVE PROBLEMS TYPING AND NEARLY ALWAYS GET SOMEONE TO HELP ME OR CUT AND PAST TO my email page check spelling and typing then repaste other times like todaqy I am so tired I cant be bothrered so sorry to anyone who is annoyed with my spelling/typing problems .I realise this is not pleasent for some to constantly read today as you can see this is ban un /retouched later I will check my posts to correct them as best I can I just want to pioint out that my illness is not so bad all the time and sometimes I operate quite well Read my first post below which I posted to explain.so it is a parkinsonian rekated illness not parkinsons disease per say hope that clears my problem typing etc with everyone here.God bless you all and may I say to the friends I have made here abig thank you to everyone who has been so kind to me I hjope we remain friends for a long time god bless alistair anyquestions I will try to answer them Alistair

Hi I am 57 years old and got into woodworking ( which I have always loved) properly about twelve years ago, when I built a 30foot by 30 foot workshop in my rear garden.I was disagnosed with a form of parkinsons disease when I was in my early forties it’s not full parkinsons and the doctors think it will remain as it is and not deteriorate very much more.I lose controll of my arms and legs for periods without my ability to control it and my arms flail around as do my legs however the medication has all but cut it down to a very acceptable level so that life whilst being difficult is bearable.sometimes It is hardly noticible then when a limb movement disorder throws nme a spinny I need to be housebound for a while.Anyway the only things you will notice is my poor typing sometimes it’s ok sometimes it’s pretty bad,so excuse me on that point.I have always be interested in art and started out whern I retired doing watercolours which weren’t too bad actually some were quite nice even if I do say so myself.I realised I would never be though really good at it and built my long time dreamt off workshop and then a few years later added a wing to the bulding and an office etc and some more machine space.then to add safety to my life among the machines I learned about machining taking a course for about five years to add to my workshop repetiore. I also do woodturning both spindle, and bowls boxes etc.I consider my talents to be more of a designer artist than a cabinet maker which I strive to be.All the things I make I usually design myself hence the name art workshop and build mostly furniture etc for family and friends. I never sell anything at all.I have a lot to learn and hope the good Lord spares me enough to make some more really nice things.
I have 3 sons one the eldest Alistair is a law graduate with honours the second Russell newly married is a doctor specialising as a Psychiatrist and his new bride Lucie is also a doctor in the same field.Then there’s Ewen my youngest who is currently in Japan to teach English he is a journalist graduate b.a hons so apart from me (smiley here) thay are all clever my wife Bronwen writes books and has just had her fourth published here is an example of whet she does.

-- excuse my typing as I have a form of parkinsons disease


44 replies so far

View PurpLev's profile

PurpLev

8476 posts in 2243 days


#1 posted 1855 days ago

I think it takes a lot of courage to come out and admit what you have. more power to you!

I personally know someone with a similar issue, and you might want to check with your Doc about a procedure to implement a small chip in your head that releases electrical pulses – it basically backs up the brain signals that are being limited by this decease and really does miracles! I’ve seen people that wouldn’t be able to walk into the operation room, walk right out of it on their own a few hours later… it’s that big of a difference. and worth checking into. if might be of great relief to you and your loved ones.

Peace

-- ㊍ When in doubt - There is no doubt - Go the safer route.

View SCOTSMAN's profile

SCOTSMAN

5241 posts in 2180 days


#2 posted 1855 days ago

P lev I have undergoOne a clinical consultation re something like this and couldn’t find a doctor who would touch me with a bargepole that was the problem even then in my case it was not the same part of the brain this operation relieves so I was tOold if my memory serve s me well it wqs a while ago I asked about this before thanks anyway my friend.Alistair

-- excuse my typing as I have a form of parkinsons disease

View SteveL's profile

SteveL

142 posts in 2363 days


#3 posted 1855 days ago

No need to explain anything. IMHO, anyone who doesn’t have the patience to read around the occasional “thumb-fart” in a blog post should pay their money to buy professionally edited books on woodworking. We all make mistakes typing, and though you make a few more than most, I’ve had no trouble understanding your wit and wisdom. Keep it coming!

-- SteveL

View Dick, & Barb Cain's profile

Dick, & Barb Cain

8693 posts in 2894 days


#4 posted 1855 days ago

A very touching story Alistair.

We admire your attitude with life, even under your circumstance.

We wish you many years of abundant life, so you can follow your crafty nature.

Our oldest son is your age, so you’re still a kid yet.

We still consider both of our boys as youngsters yet, no matter how old they are.

-- -** You are never to old to set another goal or to dream a new dream ****************** Dick, & Barb Cain, Hibbing, MN. http://www.woodcarvingillustrated.com/gallery/member.php?uid=3627&protype=1

View SCOTSMAN's profile

SCOTSMAN

5241 posts in 2180 days


#5 posted 1855 days ago

I must confess I feel I must make more and a bttere attempt to take my time andwhen poosible check my typing more I fully understand it is not nice for others to sometimes reaD MY POSTS anway I also want to say many of you lovely people live in teh good old USA I have been to the states many many times mostly or actually walways on vacation and nearly always to florida clearwater and other parts I have always found Americans like the scots to be very warm and welcoming I also have a very deep affection for the English people who have always been very kind to me they too are lovely people. feel very humbled at times by your genuine kindness towards me on the lumberjokcks site here I have many friends here and buddies also you must pat each other on the back sometimes and remind your selves how beautiful you are as a nation among the nicest people I know we here in the uk and you come in for worldwide criticism for what our governments do I don’t alway agree with your governments but I dont agree with my own either so thats nothing to do with the ordinary people god bless my dear friends her I will never forget your great welcome to me and your generous acts of brotherly love.I am here to stay .Alistair

-- excuse my typing as I have a form of parkinsons disease

View ajosephg's profile

ajosephg

1839 posts in 2156 days


#6 posted 1855 days ago

Thanks for the update – keep hanging in there. You are an inspiration to all of us, as many people just give up and withdraw from life

-- Joe

View Dick, & Barb Cain's profile

Dick, & Barb Cain

8693 posts in 2894 days


#7 posted 1855 days ago

If we can read this, we can read what you type. No pun intended.

i cdnuolt blveiee taht I cluod aulaclty uesdnatnrd waht I was rdanieg. The phaonmneal pweor of the hmuan mnid, aoccdrnig to a rscheearch at Cmabrigde Uinervtisy, it dseno’t mtaetr in waht oerdr the ltteres in a wrod are, the olny iproamtnt tihng is taht the frsit and lsat ltteer be in the rghit pclae. The rset can be a taotl mses and you can sitll raed it whotuit a pboerlm. Tihs is bcuseae the huamn mnid deos not raed ervey lteter by istlef, but the wrod as a wlohe. Azanmig huh? Yaeh and I awlyas tghuhot slpeling was ipmorantt!

-- -** You are never to old to set another goal or to dream a new dream ****************** Dick, & Barb Cain, Hibbing, MN. http://www.woodcarvingillustrated.com/gallery/member.php?uid=3627&protype=1

View ellen35's profile

ellen35

2556 posts in 2027 days


#8 posted 1855 days ago

Alistair,
You write any way you want. We understand you just fine. You are a wonderful LJ and I for one, appreciate all your comments and thoughts…and your hard questions! I love your posts!
Ellen

-- "Don't let the perfect be the enemy of the good." Voltaire

View Don Newton's profile

Don Newton

712 posts in 2213 days


#9 posted 1855 days ago

Alistair,

What doesn’t kill us makes us stronger. It is no big deal to read around the mistypings. Sometimes in life you have to sort through the chaff to get to the wheat. You hang in there friend and keep inspiring me with your posts.

-- Don, Pittsburgh

View Joe Lyddon's profile

Joe Lyddon

7617 posts in 2647 days


#10 posted 1855 days ago

Alistair,

A very touching story indeed… You’re in our prayers.

Here is a Link that may help you… I think he’s on to something… Take a look… Hope it helps.
Watch all of the video shows that you can…

http://www.knowthecause.com/

-- Have Fun! Joe Lyddon - Alta Loma, CA USA - Home: http://www.WoodworkStuff.net ... My Small Gallery: http://www.ncwoodworker.net/pp/showgallery.php?ppuser=1389&cat=500"

View Jen's profile

Jen

28 posts in 1880 days


#11 posted 1855 days ago

Alistair,

I SO wouldn’t worry about your typing! Even perfectionists like me have no problem because your typing is a bit off sometimes. I wouldn’t stress about it. I am confident in speaking for everyone when I say, those of us who care about you, couldn’t care less. I always get what you’re trying to say, ALL of the time. :-)

So, as the Jamaicans say, “No worries Mon”. Keep typing. We love to hear from you!

-- Jen - Imlay City, MI ~~ People laugh at me because I am different, I laugh at them because they are all the same.

View pommy's profile

pommy

1697 posts in 2286 days


#12 posted 1855 days ago

Hi mate

like everyone eles here WE ARE WOODWORKERS not computer geeks lol…...... you keep making and we keep looking mate as for the rest we all know here in England that we live with a post code health care so you and me both know that when a quack says he cant operate usualy means he wont operate because of money all i can say mate is all the while you CAN do you do and when you find it a bit to much REST i for one love your work
and also i wouldnt mind living were you live because when you can’t work at least you have the best views in the world

Good luck mate
Andy

-- cut it saw it scrap it SKPE: ANDREW.CARTER69

View gene's profile

gene

2184 posts in 2478 days


#13 posted 1855 days ago

Hi! Alistair,
I have you listed as one of my buddies here at LJ’s for the same reasons that you seem to want to apologize for. As for me, I truly understand and you should not feel that you need to make an apology to anyone. When it comes to bad health, I have had my problems as well. With your health, it’s truly a miracle, a tribute to your courage and your faith that you even try to do any woodworking. If you need a friend to chat with? Send me a PM ! I’ll be happy to respond.
God bless and keep on smiling. You are in my prayers!

-- Gene, a Christian in Virginia

View lew's profile

lew

9937 posts in 2350 days


#14 posted 1855 days ago

Alistair,

You are among friends, here. You don’t have to worry that any of us may misunderstand what you are experiencing. We look forward to your posts, your wisdom and your humor.

Lew

-- Lew- Time traveler. Purveyor of the Universe's finest custom rolling pins.

View poroskywood's profile

poroskywood

614 posts in 1959 days


#15 posted 1855 days ago

Alistair, Your posts are always thoughtful. I read that rude remark in a post yesterday and I guess that is what spurred this on. It made me mad but I just kept my mouth shut. You explain your condition in your signature for pete’s sake. Don’t let one guy or anybody who does not get it, make you feel self conscious, with out communication the world would be a lonely place. I’m glad your able to keep plugging away, and find peace and joy in what you do. With out spell check you would think I was a six year old.

-- There's many a slip betwixt a cup and a lip.--Scott

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