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Crohn's Disease

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Forum topic by LocalMac posted 06-05-2009 05:15 AM 1163 views 0 times favorited 10 replies Add to Favorites Watch
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LocalMac

281 posts in 2872 days


06-05-2009 05:15 AM

My fiance was just diagnosed with Crohn’s Disease. We just spent five days in a hospital in Fargo becaus the pain was too much. She’s doing better now thank God but is still having difficulty. I was wondering if anyone here has or knows someone with Crohn’s? It’s hard to find a lot of info on it or personal stories from others. We’d appreciate any help with knowledge. Thanks.

-- Don't tell her I'm in the shop!


10 replies so far

View Neodogg's profile

Neodogg

94 posts in 2893 days


#1 posted 06-05-2009 05:29 AM

My best friend has it, got diagnosed while we were in college. He’s on daily meds, and has a “spell” every once in a great while. If you’d like his email, I’m sure he wouldn’t mind talking about it.

-- If you can't fix it with a hammer, you've got an electrical problem!

View Bureaucrat's profile

Bureaucrat

18337 posts in 3118 days


#2 posted 06-05-2009 06:50 AM

My wife works with some one with Crohn’s. He is generally keeps it under control with diet and meds. She’s known him for about 15 years and at one point he did have some of his intestines removed. This has brought him much relief. Other than his diet and occasional spells, he doesn’t have any restrictions, or at least that’s the way he acts.

-- Gary D. Stoughton, WI

View PurpLev's profile

PurpLev

8523 posts in 3114 days


#3 posted 06-05-2009 06:58 AM

Sorry to hear that. hope you find a way to treat it and have it experience as little as possible.

-- ㊍ When in doubt - There is no doubt - Go the safer route.

View LesB's profile

LesB

1237 posts in 2909 days


#4 posted 06-05-2009 07:44 AM

I have known two people personally who have Crohn’s. From talking to them it appears the symptoms can vary quite a bit from individual to individual. It does seem to “flare” up from time to time and the reasons for the the episodes is not always apparent. One fellow seemed to have no dietary restrictions and the other has problems with all kinds of foods. The good news seems to be that people can have a nearly normal life with it but it will be a life long affliction that both of you will have to learn to live with. Make sure you are ready for problems it may cause before you get married.
There are information and supports groups out there.Search the internet.
Here is one, <http: />

-- Les B, Oregon

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TopamaxSurvivor

17672 posts in 3142 days


#5 posted 06-05-2009 08:02 AM

Sorry to hear that. I have only known one & but not very well. We’ll pray she has a light case that’s easy to live with.

-- Bob in WW ~ "some old things are lovely, warm still with life ... of the forgotten men who made them." - D.H. Lawrence

View LesB's profile

LesB

1237 posts in 2909 days


#6 posted 06-05-2009 07:05 PM

I just noticed that the web site I tried to put in my message did not show. Just Google Crohn’s support groups. There are a lot of them on the web. As an after thought I see my message may have been a little strong at the end but it is the same advice I gave my son when he married a woman with severe allergies. He married her anyway but has on occasion complained to me about the extra problems the allergies have created in their daily activities and general lifestyle. However because he was mentally prepared and sought counseling before they married they do have a happy and successful marriage.
This disease will affect you both on a daily basis so it is important that you and she be fully aware of the difficulties it will create.
I have noticed that there have been some new findings for treating Crohn’s so I wish your fiance good fortune and both of you a long happy life together.
ps. You might want to seek treatment outside Fargo. I would look into the Mayo Clinic if it were me.

-- Les B, Oregon

View pommy's profile

pommy

1697 posts in 3157 days


#7 posted 06-05-2009 07:11 PM

Localmac

I very sorry to hear that and i hope you both are getting all the support you need my prayers are with you and your girlfriend and as lesb says the world is a very small place when we use the web

Andy

-- cut it saw it scrap it SKPE: ANDREW.CARTER69

View jonaskoski's profile

jonaskoski

6 posts in 2743 days


#8 posted 06-05-2009 07:48 PM

You don’t have to just live with disease like most people tell you. If you really want your health back want you health back you will find a way. I don’t know anything about your history but I would like to talk to you about it. I have some websites that I would recommend to you. Educate yourself and you’ll be amazed how much hope is out there. I know you won’t find any in the doctors office. I’ll say a prayer for you and your fiance. Email me at: fleetbmx@yahoo.com

View juniorjock's profile

juniorjock

1930 posts in 3231 days


#9 posted 06-06-2009 01:00 AM

My sister has suffered with it for years. Several surgeries….... It’s a long hard road but by no means a “death sentence”...... and there’s no reason you can’t have a happy, normal life together. I’m sure it will be easier with the two of you together. Search the web but just remember that you can’t believe every little thing you see there. Good luck. Stay strong.

View LocalMac's profile

LocalMac

281 posts in 2872 days


#10 posted 06-06-2009 06:41 AM

Thanks to everyone for your support. Fortunately we have a very strong relationship and faith. We appreciate your advice.

-- Don't tell her I'm in the shop!

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