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My son with Asperger Syndrome...

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Forum topic by christopheralan posted 10-25-2008 03:07 AM 1496 views 0 times favorited 7 replies Add to Favorites Watch
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christopheralan

1126 posts in 3800 days


10-25-2008 03:07 AM

I have a cool kid. Four actually. Three are special needs. Our birth son has a high functioning form of autism, called Asperger Syndrome. We were told this around two years ago, and were lost. We had no clue what AS was. My wife Sarah started to do research on AS and is now a wealth of knowledge on it. Funny, but Kyle is now teaching us. He has passion for animals, pokemon, power rangers and woodworking (I hope…he is only 6). His brain is a sponge and he has such a desire to learn about the world around him.

Kyle has a hard time when things change. Socially, he struggles. He doesn’t express pain or worry well. He tries though. We are so proud of him and he is a great brother for his adopted siblings. Honestly, none of this would have been discovered if not for the efforts of my wife. Sarah as been in the trenches on this. I am so blessed to have my family and I hade to share it with all of you.

If you know some one with AS or have children with AS, you may have found that there are not many who have heard or know what AS is. To help spread the word, she has started a website that sells shirts, hats and as soon as she can, other items to spread the word. A portion of the money raised with go to autism research.

Please take a look at her site if you have the chance. She is still working on it, but it is up and running. Thanks in advance!

http://www.zazzle.com/bjorges

-- christopheralan


7 replies so far

View lew's profile

lew

12204 posts in 3835 days


#1 posted 10-25-2008 04:04 AM

Chris,

Like you, I had never heard of this AS until a few years ago. I had a student, in school, that suffered from it. As you have pointed out, they do not socialize well and have difficulty with change. The neat thing about these kids- as you have discovered- is they fixate on a topic and learn every detail about it. They become specialized encyclopedias. My student was interested in computer and could describe operations and functions so accurately, he put me to shame.

The only problem with this is, they sometimes get “tunnel vision” and can misinterpret information, or take it out of context. When that happens, it is very difficult to convince them they have made a mistake. I found that with using humor and affection, we had a great relationship and I could help him understand his errors. The biggest hurdle I faced was getting the other students to fully understand his problems. He could be social and a willing participant at one time and then totally antisocial at another time- in similar situations.

Our school system provided him with an assistant. The assistant was with him for most of his waking hours and for many years. This helped him some but the classroom environment of a vocational school was often a little overwhelming. He did graduate and was employed for a while, but I have lost contact with him.

Discovering Kyle’s AS early was a blessing. It will provide you with more time to work with him and get the proper therapy and training so he can be successful.

Lew

-- Lew- Time traveler. Purveyor of the Universe's finest custom rolling pins.

View Russel's profile

Russel

2199 posts in 4018 days


#2 posted 10-25-2008 02:57 PM

Chris, I have a nephew with AS. To those that don’t know him he is considered odd and sometimes scary. To those of us who know him and those that have made the effort we see a boy who, while in his own world, is capable of providing a fair amount of joy along with the extra effort it takes to care for him. I’ve developed a new level of respect for my brother and his wife as they have spent the last 12 years learning to live with this special young man. Special needs often bring special gifts.

-- Working at Woodworking http://www.VillageLaneFurniture.com

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Douglas Bordner

4024 posts in 4143 days


#3 posted 10-25-2008 03:11 PM

Well put, Russel. God bless you, christopheralan, your family and you other gentlemen. My Step-son has had a diagnosis of ADHD since shortly after I married in, and it certainly is helpful to have gotten to the point of having a diagnosis in hand. I like to believe that we are given these challenges with the children we raise or mentor for a reason. Best wishes to all.

-- "Bordnerizing" perfectly good lumber for over a decade.

View olddutchman's profile

olddutchman

187 posts in 4014 days


#4 posted 10-25-2008 03:15 PM

We have a Grandson with Aspergers, And i am blessed to have him and his mother and sister with us. He is 13 years old, and he also has a great deal of knowledge in his head. It is trapped up there, and He is not able to put it on paper. My grandson, whose name is Hunter is a very loving boy who has difficulties with sharing normal relationships with his classmates, but with a lot of help, is moving along. He also lost His father to cancer, so He has had to deal with a lot in his short life. We don,t have guite the system caring for him as Lew talks about, but He is a joy to be with. He is a walking encycopedia on anything . He loves ,woodworking. school, He can can talk about a lot of other things. He can talk with the doctors about the brain, canser, Knowledgeable on the war, ect. I am doing my level best to understand him, and his Aspergers, We’ll will give him all the support we can. I wish you and Your wife well in your indeavors, And your Son, God bless all of you!

-- Saved, and so grateful, consider who Created it ALL!!!

View rhett's profile

rhett

742 posts in 3747 days


#5 posted 10-26-2008 02:26 AM

I am glad to see you and your wife taking a positive approach to such a detremental disorder. I myself have a son with autism and know the day to day obstacles you must face. I am happy to see you and your wife taking such a proactive approach to getting the word out about a disorder that will soon take hold of America. I case some of you may be unaware, autism has a startling rate of 1 in 155 Americans born to date. My question is this, what’s to happen 18 years from now?

-- Doubt kills more dreams than failure.

View MsDebbieP's profile

MsDebbieP

18615 posts in 4240 days


#6 posted 10-26-2008 07:26 PM

I think the best thing we can give people with special needs is “information sharing about the disorders” so the rest of the world understands, respects, and accepts the individual challenges and unique characteristics.
A little knowledge and exposure goes a long way!
“We often fear what we do not understand”

-- ~ Debbie, Canada (https://www.facebook.com/DebbiePribeleENJOConsultant)

View romansfivefive's profile

romansfivefive

302 posts in 3852 days


#7 posted 11-12-2008 05:22 PM

I really feel for kids whose challenges aren’t outwardly visable. It is easy to misunderstand the way a specific need manifests itself in a kid’s behaviour, relationships and development if it isn’t something we are familiar with. It is easy to accept that the kid with diabetes can’t handle sugar, but we don’t offer the same compassion to the kid with AS who can’t handle change. I encourage you to continue sharing your story and perhaps that will help the rest of us when we see a kid with a challenge, to recognize the kid first and realize their challenge doesn’t define who they are.

-- The CNC machine can either produce the work of art you imagined, or very decorative firewood.

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