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Blog entry by Chris Wright posted 425 days ago 977 reads 0 times favorited 9 comments Add to Favorites Watch

Almost four years ago my first son passed away from complications resulting for Congenital Diaphragmatic Hernia, a birth defect where the diaphragm doesn’t fully form and the contents of the abdomen, stomach, intestines and in some case parts of the bowel, push up into the chest cavity. This causes a dislocation of the heart and restricted development of the lungs. On average 50% of babies with CDH do not survive and about 50% of the ones that do require long hospital stays to recover. I share this information with you to ask for your help. April 19th is CDH awareness day and there is a petition on the White House’s petition page requesting that the White House be lit up for CDH awareness day. It would mean a lot to me and my wife and the families of all the other children who have suffered with CDH if you would join us in signing this petition. The goal is 100,000 signatures by March 9th.

Thank you,
Chris

https://petitions.whitehouse.gov/petition/light-white-house-international-day-congenital-diaphragmatic-hernia-awareness-april-19th/slTN4fmQ

-- "At its best, life is completely unpredictable." - Christopher Walken



9 comments so far

View KnotWright's profile

KnotWright

247 posts in 1994 days


#1 posted 425 days ago

I challenge all my other Lumberjocks to take a minute and sign for a good cause! I did.

-- James

View joein10asee's profile

joein10asee

2767 posts in 513 days


#2 posted 425 days ago

My heart goes out to you for your loss, and yes I will most certainly sign it.

-- Perform A Random Act Of Kindness Today ... Pay It Forward

View tefinn's profile

tefinn

1171 posts in 943 days


#3 posted 425 days ago

You have my condolences and my signature.

-- Tom Finnigan - Measures? We don't need no stinking measures! - Hmm, maybe thats why my project pieces don't fit.

View ChuckC's profile

ChuckC

674 posts in 1441 days


#4 posted 425 days ago

I am very sorry for your loss. Petition signed.

View Cosmicsniper's profile

Cosmicsniper

2199 posts in 1664 days


#5 posted 425 days ago

That’s awful, Chris. So sorry. Signed.

-- jay, www.allaboutastro.com

View Jorge G.'s profile

Jorge G.

1492 posts in 981 days


#6 posted 425 days ago

Done….

-- "It is what you do with what you know that matters" - James Krenov

View NormG's profile

NormG

3632 posts in 1510 days


#7 posted 424 days ago

Done

-- Norman

View Robb's profile

Robb

660 posts in 2440 days


#8 posted 423 days ago

Signed it. I hope you reach the goal.

My condolences on the loss of your son.

-- Robb

View Mauricio's profile

Mauricio

6694 posts in 1657 days


#9 posted 422 days ago

Done.

-- Mauricio - Woodstock, GA - "Confusion is the Womb of Learning, with utter conviction being it's Tomb" Prof. T.O. Nitsch

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