Last week truly sucked. I typically don’t like that expression, but in this case it sums it up nicely.
In April, it will be two years since I started this medical misadventure. Before last week, my diagnosis was idiopathic small fiber neuropathy. In other words, you have nerve damage. We don’t know what caused it. It may or may not level off. Go home and take drugs, or surround yourself with white light, or eat kale, whatever works. In my case, my pain management has involved lots of Home Depot. And Lumberjocks.
Life goes on and we must adjust. I had been off work again since November and was looking forward to going back in some capacity. I still feel that I can contribute at work, just not as I had before. I thought I was doing a mighty fine job of rolling with the punches. (if I do say so myself)
Then whammo, about a week ago, I woke up feeling like I was shrouded in cement. I typically feel like that in hot weather since this all began, not at 25 below zero. I saw my neurologist and the next day went for more nerve conduction studies. Nerve conduction studies do not pick up small fiber neuropathy, so until now those tests had been normal. Not this time. So the neurologist tells me that he thinks that my sensory nerves are now involved, and I perhaps have an autonomic component to whatever-it-is.
I know enough about the nervous system to know that this is not good.
I’m being referred to the Montreal Neurological Institute which is a good thing. The wait list however is probably 4-6 months.
I know it could be worse, and I’m grateful for many things in my life, etc etc. And while I’m pretty private about my beliefs, I do have faith and find comfort in prayer.
Regardless, this stinks and I’m officially not handling it ‘well’ tonight.
Now if they call tomorrow to tell me that my Rikon bandsaw has arrived, I may perk up. Maybe.
-- No, I don't want to buy the pink hammer.