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Health issues and Attitude adjustment #6: Having ologist-itis...

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Blog entry by Sandra posted 01-29-2013 01:35 AM 1972 reads 0 times favorited 25 comments Add to Favorites Watch
« Part 5: Bungie cord injury. Dufus factor squared Part 6 of Health issues and Attitude adjustment series no next part

Last week truly sucked. I typically don’t like that expression, but in this case it sums it up nicely.

In April, it will be two years since I started this medical misadventure. Before last week, my diagnosis was idiopathic small fiber neuropathy. In other words, you have nerve damage. We don’t know what caused it. It may or may not level off. Go home and take drugs, or surround yourself with white light, or eat kale, whatever works. In my case, my pain management has involved lots of Home Depot. And Lumberjocks.

Life goes on and we must adjust. I had been off work again since November and was looking forward to going back in some capacity. I still feel that I can contribute at work, just not as I had before. I thought I was doing a mighty fine job of rolling with the punches. (if I do say so myself)

Then whammo, about a week ago, I woke up feeling like I was shrouded in cement. I typically feel like that in hot weather since this all began, not at 25 below zero. I saw my neurologist and the next day went for more nerve conduction studies. Nerve conduction studies do not pick up small fiber neuropathy, so until now those tests had been normal. Not this time. So the neurologist tells me that he thinks that my sensory nerves are now involved, and I perhaps have an autonomic component to whatever-it-is.

I know enough about the nervous system to know that this is not good.

I’m being referred to the Montreal Neurological Institute which is a good thing. The wait list however is probably 4-6 months.

I know it could be worse, and I’m grateful for many things in my life, etc etc. And while I’m pretty private about my beliefs, I do have faith and find comfort in prayer.
Regardless, this stinks and I’m officially not handling it ‘well’ tonight.

Now if they call tomorrow to tell me that my Rikon bandsaw has arrived, I may perk up. Maybe.

Bah, humbug!
Sandra

-- No, I don't want to buy the pink hammer.



25 comments so far

View Monte Pittman's profile

Monte Pittman

14334 posts in 1003 days


#1 posted 01-29-2013 01:43 AM

Not much more I can say other than you’re in my prayers as well. May your health improve and your bandsaw arrive in a timely manner.

-- Mother Nature created it, I just assemble it.

View Dallas's profile (online now)

Dallas

2965 posts in 1152 days


#2 posted 01-29-2013 01:52 AM

Yup, Sandra, you are in the wife’s and my prayers also.

We’re pullin’ for ya!

-- Improvise.... Adapt...... Overcome!

View Handtooler's profile

Handtooler

1086 posts in 797 days


#3 posted 01-29-2013 01:54 AM

May God bless you Sandra. I likewise have you in my prayers. You are a wonderful contributer to our LJ community. Hope that band saw gives you great relief from your agony.

-- Russell Pitner Hixson, TN 37343 bassboy40@msn.com

View TNT82's profile

TNT82

44 posts in 619 days


#4 posted 01-29-2013 01:57 AM

I can identify with some of your struggles I went through a bout with cancer 4 years ago I was in a dark place.that’s when I found my faith.you will be in my prayers also

View a1Jim's profile (online now)

a1Jim

112151 posts in 2242 days


#5 posted 01-29-2013 02:12 AM

I really feel for you I hope they can come up with a solution that gives you real relief. You know you have lots of friends and support here on Ljs . My prayers are also coming your way. I sincerely hope things improve for you right away.

-- http://artisticwoodstudio.com Custom furniture

View gfadvm's profile

gfadvm

10974 posts in 1355 days


#6 posted 01-29-2013 02:31 AM

Sandra- Your great attitude is inspiring! My bout with cancer left me with a “why me” attitude which didn’t help at all. You are in our prayers and a new tool always makes things better! Keep your chin up.

-- " I'll try to be nicer, if you'll try to be smarter" gfadvm

View Sandra's profile

Sandra

4478 posts in 740 days


#7 posted 01-29-2013 02:44 AM

Fingers are crossed for that Rikon to arrive…..

-- No, I don't want to buy the pink hammer.

View cwdance1's profile

cwdance1

1143 posts in 1924 days


#8 posted 01-29-2013 04:03 AM

I too will put you in my prayers.

View DocSavage45's profile

DocSavage45

5041 posts in 1507 days


#9 posted 01-29-2013 04:17 AM

Sandra,

Some people think they will live forever and waste their lives. Just saw a Charlie Rose show . The last in his brain series which was on creativity. Three people, a sculptur. a painter/2 dimensional art and one nurologist/artist. What I took from the show, as each of these guys had a brain dysfunction is they are workers, problem solvers, and worked through their illnesses to become significant in their work. You have persistnce and drive.

As god (Morgan Freeman) Says to Evan in Evan Almighty…”People ask for thiis and that, and I give them the opportunity.”

When the Rikon comes…do your thing! Life is short!

-- Cau Haus Designs, Thomas J. Tieffenbacher

View TopamaxSurvivor's profile

TopamaxSurvivor

14793 posts in 2341 days


#10 posted 01-29-2013 09:25 AM

I’m not real fond of that phrase either, but yes, it does. Sorry to hear this. I have had chronic migraines since 1995. I spent a decade in daily, unbearable pain. Unfortunately, doctors only made matters worse partially due to their inability to read their own professional standards and the haz-mat data that is packaged with the drugs they push. I hope you have a better experience with your drs.

Your attitude is what will see you through and probably be a key in your recovery. I had to fire the drs that were destroying my life They wanted me twiddling my thumbs while starring out a window for the rest of my life. I had to learn enough about migraines and other headaches to diagnose myself. I used narcotic pain control to get the pain low enough to discover the triggers. A year ago I took myself off narcotic pain killers and have just discontinued the last of the other drugs I got my GP to prescribe.

A friend who has had MS for at least 25 years is doing fine and shows no visible symptoms. She beat it with attitude, research and diet. Doctors say she should have been an invalid by now. Typing this has taken about 5 times as long as it would have pre-Topamax. It was nine years in December that I took myself off of it and fired that dr. It took 3 years to recover my ability to type and about 4 to write coherently. I still scramble 10 % of the words, but typing is part of the recovery precess. I’m still working on it right now. At least spell check finds a lot of the errors I miss ;-))

You and your attitude are your greatest assets. Good luck and look towards a better day tomorrow!

-- "some old things are lovely, warm still with life ... of the forgotten men who made them." - D.H. Lawrence

View whitebeast88's profile

whitebeast88

3530 posts in 855 days


#11 posted 01-30-2013 12:54 AM

i will keep you in my prayers also,and wish you good fortune a some relief soon.

-- Marty.Athens,AL

View Sandra's profile

Sandra

4478 posts in 740 days


#12 posted 01-30-2013 01:18 AM

Thanks so much to all of you. I really can’t explain how much this site has meant to me.

I made it out to the shop today and managed a bit of work on a cart I’m making for my shopvac and DustDeputy.
I walked the dog and made supper. I’ll chalk that up as a good day.

Topa- I appreciate you taking the time to type your message. Chronic pain is hard to understand without having lived it. I know you’ve been there and are still fighting, my hat goes off to you.

G’night John-Boy

-- No, I don't want to buy the pink hammer.

View TopamaxSurvivor's profile

TopamaxSurvivor

14793 posts in 2341 days


#13 posted 01-30-2013 03:31 AM

Every time I think about how hard it is, I think about how lucky I am. There are so many that have much bigger burdens than I. Just keep looking at the bright side and keep the faith.

-- "some old things are lovely, warm still with life ... of the forgotten men who made them." - D.H. Lawrence

View DIYaholic's profile

DIYaholic

13620 posts in 1340 days


#14 posted 01-30-2013 02:04 PM

Not sure what to say, except that your attitude and positive disposition WILL get you though this. You are a strong willed individual, although down, you are not out!!!

The Rikon will be a pleasant diversion and really fun toy, err tool to play with!!

My best to you and yours!!!

-- Randy-- I may not be good...but I am slow! If good things come to those who wait.... Why is procratination a bad thing?

View Sandra's profile

Sandra

4478 posts in 740 days


#15 posted 01-30-2013 02:26 PM

The Rikon has arrived! The Rikon has arrived!

-- No, I don't want to buy the pink hammer.

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