Was in Halifax this week for testing, and FINALLY it’s been confirmed that there is something serious going on with my nervous system.
Without going into mind-numbing detail, I’ve spent the past 18 months in a big cloud of uncertainty. I was hospitalized, initially diagnosed with ankylosing spondylitis, then that was tossed, hospitalized again, maybe MS? Not MS. Hospitalized again, more tests, more waiting. Back to work, off work again, etc etc etc.
I don’t have lupus, I don’t have MS, I’ve been tested more times for Lyme than I can count. I’ve had 6 MRIs. I don’t have syphilis!!!! (That one was funny) I don’t have moye moye disease, or sjorgren’s syndrome and a plethora of other things I didn’t even know I should be worried about. I’ve been poked, prodded, scanned, tapped, and x-rayed.
Since this all began, I’ve been gradually losing sensations in my feet. I now can’t sense hot or cold. They still work, I can still walk, I just have to be careful. In the past few months, my left hand started to bother me, and in Halifax I found out that I’m not sensing vibrations in that hand much at all.
I have a lot of neuropathic pain and crushing fatigue among other things. Prior to all of this, I was very healthy, running marathons.
Why am I posting this here? Because the silver lining is that I have discovered woodworking by being sick. When I’m in pain, I do not want to be around anyone but I can’t stand being idle. If I”m going to feel lousy, I might as well feel lousy and get something done. So I’ve been spending a lot of time in the garage. I can’t return to my job until this is all sorted out, so I’m home most of the time.
Finding out that my hands are now affected scared the crap out of me. I love making things with my hands. I always wanted to get into woodworking, and I’m learning that it’s now or possibly never.
Buying tools has been a blast, learning new skills has kept my mind occupied. I’ve always had a healthy respect for power tools, but now I have to factor in my fatigue among other things.
So now I wait for the specialist to interpret the tests and see where we go. The waiting is enough to drive me around the bend.
The trip to Halifax took a lot out of me, and I spent the last two days feeling rather sorry for myself. And then tonight I decided to get back out into the garage (maybe I’ll start to call it my shop?) and cut some MDF into strips to make a circular saw jig and the ink storage shelf I’d planned. It felt wonderful.
So a heartfelt thanks for giving a newby like me a place to come to ask for suggestions and learn without being told that I should eat more kale, go gluten-free, meditate, eat less kale etc etc….
This has been the best therapy yet.
Hmmmmm, I guess that was plenty of mind-numbing details.
-- No, I don't want to buy the pink hammer.